Maica’s chemo is count dependent & today was the first time since diagnosis she didn’t make counts. 😭 Her neutrophils were too low for them to administer chemo. Everything else was good... so it’s just a waiting game & we will go back on Dec. 27 for them to check again & 🤞🏼administer her new chemo. The bright side of this is, she won’t feel like crap on Christmas!!! 😍🌲🎉 In other newsssssss: WE MOVED to Richmond & are close to the hospital! 🙌🏼 This was a HUGE Christmas miracle & we are so blessed by God’s Grace on us in this season. 💛Cue random happy tears every hour or so. 😭😂 AND ALSO 🙈Plexus is releasing a NEW PRODUCT tonight & I am PUMPED! I have no clue what it is yet!! 🥳 Any guesses?? Let me know if you want to be on my list of people who are the FIRST TO KNOW! 🤩💃🏽🎉 #newseason#MaicaEdel#chemotherapy#leukemia#cancersucks#cancerawareness#newproduct#productlaunch#plexus#medicalcareteam#christmastime#birthdaygift
After my biopsy my oncologist ordered a few tests to determine the size of the tumor and CT scans to make sure the cancer hadn’t spread to my lungs. Afterward I had a consultation with another surgeon to schedule a date for my mediport placement. Since my chemo meds are fairly aggressive, if I were to get an IV each time I needed chemo my veins would be burnt out by the end of treatment. The port allows the chemo to be pumped directly into my subclavian vein leading to my heart, so it minimizes damage to smaller veins in my hands and arms. The port looks like a small circular bump under my skin and every time I get chemo the nurse has to “access” it - she pokes a long needle attached to tubing into it. It works just like an IV, medication can be administered into it and blood can also be drawn from it. When it’s not accessed I barely notice it. If I touch it I can feel it under my skin and there’s a visible bump, but it doesn’t hurt or bother me. The first two pics are from after the surgery to insert it, the third pic is what it looks like when it’s accessed, and the fourth shows its placement under the skin and into the vein leading to my heart. Once my treatment is over I’ll have another quick surgery to remove it.
Grateful for it all. I try to let pain and suffering bring good lessons and deeper gratitude for the neutral and good things along the way. Too often we don’t give thanks and gratitude for the parts of us that do their job without issue or noise. Give some love to your organs, your bones, your tissue and all the cells in your body. They work tirelessly to support you, show them some love and give them a listen. Body Scan meditations are a great way to do this. Mindfulness of breath can also be great. If Sitting isn’t your thing then try some mindfulness in motion. Take a mindful hike or mark off ten paces and walk that back and forth in mindfulness. It’s not the destination but the journey and present moment that’s important to focus on. Sometimes we need to get moving and sometimes we need to be still and heal. Work on all those aspects of your practice when you’re feeling good, bad and ugly and they’ll always be available to you. If you wait until the anxiety/stress/depression/fear take control it may be harder to access those skills. Live your practice and you’ll be improving it all the time. Much love everyone. Im about to get a ton of chemo and I’ll be trying my best to breathe and smile my way through it. I hope you have a wonderful day filled with amazing series of present moment bliss. Metta to all and to all a good day 😁✌️✌️❤️ #stage4cancer#justanotherliontokill#lucentintenebris#smile#breathe#mindfulness#mindfulnessasmedicine#thichnhathanh#noahlevine#chemotherapy#chemolife
0 8an hour ago
This is for you. The holidays can be hard for those who have lost a loved one to cancer or those who are going through the million radiations and chemotherapies and just wish to be home with their families. ...
It’s ok to go through the motion of your emotions, you don’t ALWAYS need to put a strong face for others. I say this with experience. I too find myself dreading the most wonderful time of the year, my favorite holiday. This year I don’t feel the magic. I’ve been strong for others instead for myself and it’s finally caught up to me, but that doesn’t make me less strong or weak. I’m embracing the sadness, the tough days to lead me into my strong days. I miss my mom and there isn’t a day I don’t think about her but I’ve got to live this life for her and fight this fight for her and all the cancer warriors out there. THIS IS FOR YOU. THIS FOR HER. YOU ARE NOT ALONE. WE ARE IN THIS TOGETHER.
Let’s talk brows. Braving the bald was surprisingly painless and ultimately quite liberating. But when my eyebrows and eyelashes started to fall out weeks after my last chemo, I struggled to recognise myself. For the first time I saw a ‘sick’ person in the mirror. Thankfully, within a few months my brows filled out again and my eyelashes grew back. But 8 years on, following a preemptive ovarian cancer op, a sudden change in hormone levels has meant that my eyebrows have started to thin again. Makeup and microblading (semi-permanent tattoo) offer great solutions. Just check out YouTube for 1000s of useful video tutorials. To fill in my menopausal brows I am currently using @maybelline brow precise fiber filler. But @kipuphealth we’re always on the lookout for organic alternatives so if you’re in the know...share below👇🏽
3 391 hours ago
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❌❗️Hyperthermic intraperitoneal chemotherapy (HIPEC) is a highly concentrated, heated chemotherapy treatment that is delivered directly to the abdomen during surgery.
✔️ Unlike systemic chemotherapy delivery, which circulates throughout the body, HIPEC delivers chemotherapy directly to cancer cells in the abdomen. This allows for higher doses of chemotherapy treatment. ✔️ Before patients receive HIPEC treatment, doctors perform cytoreductive surgery to remove visible tumors within the abdomen. Once as many tumors as possible have been removed, the heated, sterilized chemotherapy solution is delivered to the abdomen to penetrate and destroy remaining cancer cells.
The solution is 41 to 42 degrees Celsius, about the temperature of a warm bath. The solution is then drained from the abdomen and the incision is closed. ❌❌This aggressive multimodality treatment is complex, not only regarding surgical technique, but also regarding anesthesia, and is associated with major hemodynamic and metabolic changes. As well as primary disease and complexity of surgery.
❌❌Considered as a challenge for the anesthetist, it is associated with relevant fluid, blood, and protein losses, together with hemodynamic, respiratory, and metabolic dérangements .🔚 - @dr.yazan.chaban
I’m up at 6am every day. It’s a bit unusual as I don’t get up to watch the sunrise.
I wake up this early to spiritually prepare for Christmas and to say thank you. There are so many things I’m grateful for this year.
My brother did a week of chemo and got back home yesterday. He’s healing fairly fast.
We’re going to have a short and simple Christmas dinner but we’re happy we’ll have him at home with us. Let’s hope none of us gets ill, as his immune system is weak.
I’m glad Christmas holds a different meaning for me these days. It’s no longer about presents. It’s about presence. With my family. And Him. At the end of the day it’s Jesus’s birthday. There goes so much beauty and richness behind it...
Early mornings at church, applying for different visas (I’m going to five countries in January/February), helping my fam with the kids, doing office stuff for my mum. Leaves me exhausted (like on the pic above, resting in a slightly more comfortable spot though). But I’m trying to be present as much as I can. Take it all in. Breath through it. Smile through it. As I’m getting back on the road in two weeks... 🌙
How are you feeling these days?
Swipe 👉👉👉 to read on a more realistic version of The Fault In Our Stars ✨🤪🤣🤣 Infertility is obviously a huge and yet undermined issue in the cancer community which also personally affects me but we still gotta find the humor in it somehow right? ✌️✌️
On a more mellow note, anyone care to SHARE if they got any romantic encounters/experiences with fellow cancer patients? Does that really happen in real life? 🤔🤔😏😏
24 1514 hours ago
Our hearts are full with gratitude, love and appreciation for how far we’ve come. Thank you to all that sponsored a pouch, helped organized supplies, and put pouches together. We were able to donate 48 pouches this morning to patients undergoing chemo.
Still want to sponsor a pouch? You can!! We’ve already started to put together another round of pouches to be donated in the new year. Thanks for helping me make this little idea (inspired by other awesome people) turn into something so big. ❤️❤️ #gratitude#chemotherapy#chemocarepouches#survivor
It has begun! Typical, I have an incredible phobia when it comes to needles, it took 5 attempts to get a cannula in, full of holes now, turns out the fitter and stronger you are the harder it is to keep a vein still! #chemotherapy#cancersucks#lifewithcancer
Vamos começar as publicações do dia com um desabafo!
Presenciamos a realização de uma obra de saneamento no município de Limeira/SP.
Trata-se da conexão da rede de esgoto de um prédio novo (ala hospitalar) à rede pública.
Até aí, tudo muito bem!
O que precisamos destacar é que o trabalho em questão está sendo feito em horário comercial na principal rua da cidade (Rua Dr. Trajano Camargo). E mais, em frente à Oncologia do Hospital Medical, onde, além das consultas à pacientes diagnosticados com câncer, realiza-se o tratamento quimioterápico.
Em função das obras, diversos pacientes, em sua maioria idosos e pessoas debilitadas, estão tendo que andar 30-50m ou mais a pé e na chuva, já que o acesso ao local foi interditado. Isso sem contar os pacientes que chegam de ônibus (que também teve o trajeto alterado pela obra).
Ao finalizar o serviço, a empresa BRK Ambiental deixou muitos resíduos na pista (foto 2), que causa a derrapagem dos carros, situação agravada pela chuva, e que pode resultar em acidentes.
Questionados, os funcionários da empresa alegaram que a prefeitura é responsável pelo recapeamento da via.
Onde se quer chegar com esta postagem???
Gostaríamos de chamar a atenção dos responsáveis pelo agendamento deste tipo de obra. Mais atenção ao entorno antes de sua realização. Não se tratava de algo emergencial, como por exemplo, uma tubulação rompida. Assim, poderia ter sido realizada fora do horário comercial e do atendimento da oncologia, minimizando os efeitos negativos.
Se a obra é uma ação conjunta da empresa com a prefeitura, esta deveria ter sido planejada em conjunto, para que imediatamente após a finalização do serviço de saneamento fosse refeita a cobertura asfáltica.
Vamos colocar empatia no nosso dia-a-dia! Por um olhar mais humano por parte das empresas. Por mais saneamento. Por uma gestão pública pensada realmente nas pessoas.
Mais amor, por favor! 💖🙏🏼
I dont have cancer anymore, but I’m still going through this cancer journey. It doesn’t feel right. I feel like I should be done. But all because of one tiny, microscopic mutation called flt-3, I have more work to do. The doctors say “more aggressive” so that means “more aggressive” work. More. More chemo. A stem cell transplant. 100 days staying near the leukemia unit after discharge. At least I have a port this time. They won’t have to stick me 13 times to find a strong enough vein that won’t blow for the chemo. I won’t have to have the chemo running through my neck. Is this really happening? Where have the days gone? I’ve missed so much. It doesn’t feel useless though. It feels crammed full of too much. Packed to the brim. And I still don’t even know what’s all inside that time I missed, looking back. Some anxiety. A lot of weariness. A dash of anger and resentment. A bit of hurt. A barrel of sorrow for all the lost time. It’s not really lost. What did I gain? Complete courage. Never fear. I found His Strength. His Love. I gained peace that truly I’ll never be able to describe. The calmness He gave. I was given time. More time than I deserved, more than I should have had. I found Him again. Yes, I felt I lost Him. I don’t know if I did. I probably didn’t. I probably just got caught up in life too much to truly try to find Him. Caught up in my illnesses. I do know that I truly have Him now and He is forever in my heart. I will make it a perfect home for Him, every moment of everyday I have left. That’s what I gained in the days. The future? I do not know what I will lose and what I will gain. What I will leave behind and what I will pick up. But I do know who is with me through it all. Who will hold my hand, or even me, until the end. That, I do know. And I rest in that. Sweet Peace.
Three years ago today so many amazing friends and family put together an event “Fight for Sara Olson fundraiser “! People from far and wide, strangers, old friends, new friends loved ones sent an overwhelming amount of love and support. Everyday I am so incredibly grateful for all of you that were there near and far, and to everyone around the world for all the love, support, strength and prayers! 🙏 I will never be and to thank everyone enough for all the help! 💗 Left photo was November 2015 a month into high doses of chemo. I was diagnosed October 20th, 2015 with stage 4 Burkitt’s Non -Hodgkins lymphoma. I went into the doctors with pain in my lower back and stomach. At first they thought it was my gallbladder that needed to be removed. But soon after I had to admit myself into the hospital and that’s when they found a mass forming in my abdomen... It was at 2 inches and within 5 days the mass grew to 10 inches. With many tests and frantic days trying to figure out what was happening a doctor walked into my hospital room and said the words... “you have cancer.” It was a life changing, heart stopping moment that seemed to stop time. I didn’t know what was to come all I knew was I needed to fight.
The scar and bump on top my head in the photo is an ommaya reservoir. It was used as one of my ports to administer chemotherapy due to worry and concern that the cancer looked suspicious and could be spreading to my brain or spinal column.
Right photo December 2018, crazy to think how much can change each year. Cancer was a battle that has forever changed me. I’ve come a long way and try to live moment by moment and so grateful to be here. I have gained strength and so much love through my journey.
I am close to the 3 year remission mark and so much has happened these past years. I wouldn’t be here today with out all the support. To all my loved ones, friends, family, care givers, nurses, doctors and strangers thank you so much everyone!
To supporting the Fighters and honoring the loved ones lost. Cancer is a journey no soul should have to travel. To all Cancer awareness and we can all tell Cancer to Peace OUT! ✌️ 💗